Originally Posted by
Tinydancer Actually, I only found out I had it after my oldest nephew was diagnosed with it when he was 2 and that was 17 years ago. Its a long story but after they found out he had it they wanted the whole family tested for it because his case was so severe. *Sit tight* Turns out both my sister and her husband (the explanation is very complicated of how a male passed it on) carried the factor VIII mutant gene. So the combo of the two was pretty massive. I was tested and they 1st told me it was von Willebrandts *another bleeding disorder* but when I had a spontanious bleed into my hip joint *only hemophiliacs get that* they ran newer tests and discovered I was a freakazoid and had hemophilia. So fine, but like I said its mild for me and my son has von Willebrands mildly too. Are we guilty, no not at all. Hey it is after all according to history, the disease of Royalty! I'll tell you tho, my Mom wouldn't test for it *although she is a classic case* feels guilty which I think is odd. Otherwise we're completly healthy & as a side note hemophiliacs are notorious dare devils & risk takers, we like pushing the envelope
So there you have it, as usual more info than you asked for.
Pretty interesting! Two carriers getting together... well it's been known to happen with lots of conditions. This is really interesting and I'm glad you dont' mind chatting about it (at least not that I know of, lol).
Well the guilt thing is really not rational but lots of parents whose kids have diseases or health probs feel guilty. I think that, in the future, people will be able to have more control over the potential for diseases and conditions.
I know that my mother feels guilty that I have diabetes. But I think that she is glad that she had me anyways.. hahahah. I make her laugh so it's all cool.
Maybe stem cells can help you in the future too.
Now, about the royalty of the disease, do explain, k? I'm wondering about this...
ttyl